The mission of Citizen Science for Ovarian Cancer is to raise awareness of under-studied aspects of ovarian cancer to inspire researchers and foundations.
November 3rd, 2014: My dad turned 88 and I woke up in the hospital after major abdominal surgery to learn that I had ovarian cancer. I was devastated.
Ten days later, I learned that I was one of the lucky ones: my ovarian cancer was Stage 2 – I embarked on six rounds of chemo therapy, and now five years later, my prognosis is excellent.
Most cases of ovarian cancer are not discovered at Stage 1 or 2, when the survival rate is high; most cases are discovered at Stage 3 or 4, when the prognosis is not good. Ovarian cancer has a suite of vague symptoms which means early signs often go undiagnosed.
My symptoms began in the spring of 2014; I did go to my primary care physician; nothing was identified. It never occurred to me to make an appointment with my GYN; I did consider going to a GI doctor at one point. The “complex cyst” was found at my annual GYN exam in late September.
On this web site you will see the projects that I have undertaken in an effort to keep the promise I made to myself to use my experience and the fact that I survived, to make a difference for this deadly cancer.
To contribute to Project #3: The Workshop: Together We can Learn About Living Without An Omentum:
Yours in health,
Thank you to the many, many people who have helped with this project:
Alex, Bill, Cara, Chris, Ellen, Georgianna, Janine, Jenn, Jonathon, Julie, Lesley, Lisa, Margaret, Mark, Matt, Sandy, Shane, Tony
.... and MORE....